Monday, 2 November 2009

Mum's funeral

Mum's funeral will be at 2pm on Saturday at Elie Church. It will be a chance to celebrate her life and remember her for the warm and vibrant person she was.
Katy x

Thursday, 29 October 2009

Sadly, Mum has died today

Sadly mum died this morning.
She has been increasing unwell over the last week and this morning, she stopped breathing and died.
I don't know as yet when the funeral will take place, but will let you know as soon as I know.


Monday, 2 March 2009

Once again, we're waiting

Mum has been having TIA's lately.
These are:
" A transient ischemic attack (TIA, often colloquially referred to as “mini stroke”) is caused by the changes in the blood supply to a particular area of the brain, resulting in brief neurologic dysfunction that persists, by definition, for less than 24 hours; if symptoms persist then it is categorized as a stroke.[1]"
It's significant in that they usually lead to a stoke quite quickly. Thankfully, she is not in pain and not distressed .

She has pretty much lost the ability to speak beyond limited one word answers and feels the need to pace up and down constantly. She can still recognise some faces although she does get confused easily.

I sincerely hope that she doesn't feel pain and that she does not suffer for long.

We're well down the road of selling Mum and Dad's house. We've successfully negotiated the Home report hurdle, the surveyors have been in and the For Sale sign should be going up in the next few days.
It'll be a sad day, but needs must and there's a lot of care home fees to pay on completion of the sale.

Monday, 12 January 2009

Mum is declining

Over the weekend Mum took a turn for the worse. She suffered a TIA (a kind of temporary bloodclot in her brain). It has passed and she is back to how she was before.
It is an ominous sign though that she may be likely to have a stroke in the near future. She is being well looked after and medical teams are monitoring her closely.

She is getting to a point that she is finding visitors difficult and becomes quite agitated and distressed after and sometimes during visits, especially if she is taken out of the care home by someone who is not her regular visitors.
So if you are thinking of visiting her, please be aware that we have asked the care home staff to ask that visitors do not take her out of the building, unless you are a weekly visitor.

I know it is very distressing to hear this, but please bear in mind Mum is very ill. Fronto temporal dementia is a cruel illness, in that Mum doesn't look that different on the outside, but she is very different mentally, on the inside.

If you haven't seen her for a months or even years, you will find visiting her very upsetting. She probably won't recognise you and is not able to speak very much. Please get in touch if you are thinking about visiting but are unsure how to proceed.
Katy x

Tuesday, 25 November 2008

Time has passed

Well, time has passed since Dad died. We're slowly coming to terms with it.

Sorting through Mum and Dad's things in the house has been tough, but we're getting there. The house needs a bit of work and then we'll put it on the market in the spring.

Mum has no concept of what is happening, but is thankfully in her own happy world. When I saw her last week, she looked healthier than she has in a long time. Donnie is convinced she's taken up golf or something similar, she looks so healthy.

Mentally, she has deteriorated though. It seems cruel that as her physical health seems to improve, her mental health declines. Who knows what the future holds for her, but if she stays happy enough and is well cared for, it's a relief.

Monday, 8 September 2008

Dad has passed away

Sadly Dad died last night about 9pm.
He slipped peacefully away at the Hospice without pain or distress . He most likely went to sleep and didn't wake up.
We are making funeral arrangements now - there will be a private cremation in the next day or so. This will be followed by a Thanksgiving Service on Friday 19th September at Elie Church and we will scatter his ashes at Chapel Green in Elie afterward.

Please send us kind thoughts and best wishes at this difficult time.

Thursday, 4 September 2008

Dad is going back to the hospice.

Hi all
Sadly Dad s time at home has come to an end. He spent 5 days in St Gemma s Hospice in Leeds last week and I took him home on Saturday.
He has had lots of palliative care support this week but now realises nice as it was to get home for a bit but he needs to come back for good and is going into the hospice in the morning.
The hospice is a lovely bright sunny place full of lovely friendly and highly professional people who made Dad unbelievably comfortable and controlled his symptoms.It also has the most fabulous award winning in full bloom garden which he has a balcony to sit on to view.
We all got together on Saturday/ Sunday and had a happy family time and sorted out some important stuff which was very important to him and he said goodbye to Mum.
Graham is bringing him down in the morning.
It is a terribly sad time but St Gemma is a lovely place where he is safe and comfortable and wants to be and we are all glad he near one of us rather than on his own in Fife.